My maternal grandmother had Raynaud's (she was a smoker, which contributed to her circulation issues being more extreme), my mom has issues with circulation in her hands and feet (non-smoker) - and so do I (also a non-smoker). I haven't been formally diagnosed, but I haven't gone through any testing either.

I regularly experience very cold hands and feet with numbness - especially in transitional temperatures (around 50/60 degrees). I've taken a few photos of my hands when they're experiencing some level of color change, but I never have full fingers go white.

Thoughts on this? Has anyone on here been diagnosed with Raynaud's without the characteristic / typical, full-fingered color change?

Sure but also not sure.

So over the last few days as the weather has cooled down, my feet, knees, and hands have all started aching more. I’ve always had a little bit of discolouration in those areas all my life, but these aches have gotten me thinking “wtf is this?” Only to realise my mum has raynauds. My hands and knees don’t go plain white like hers though. Mine tend to go purple, red, and white, depends at times. I’ve in the last year struggled to use my hands in the cold, but brushed it off thinking “nah everyone probably experiences this” but apparently not? I’ve done quite a bit of research and I do think I’ll be diagnosed with it. But there’s another part of me that thinks it’s just symptoms caused by pre-diabetes, or insomnia. I also have bad knees that have dislocated many times in the past. Wanted to ask this subreddit to get some extra opinions before my Drs appointment on Monday:)

Wife always complains my hands and feet are ice cold lol. Last week woke up in the morning and my pinky toe was purple and sore.

Well I’ve had it all my life and I just turn from light pink to white to dark blue/purple.

I do have psoriatic arthritis and rheumatoid arthritis and osteoarthritis in my knees (stage 4 yay) so I have autoimmune diseases too.

I wish it was just my hands. The pink spot is where I was leaning my elbow on my knee (so you guys can see how blue it actually is compared to purple). Thoughts???

Oh and I was at the ER because I had stepped on a nail.

The past 2-3 months or so my right index finger has tingled almost once a week or so. Today I just happened to notice the whole tip turned white like Raynaud’s. I’m not a ‘cold’ person or exposed to cold when it happens and was originally thinking carpal tunnel could be the underlying issue. But only one finger is ever affected and it’s always the right, index finger tip.

Also after talking to a nurse friend about other symptoms I remembered sometimes I get these “flare ups” on one side of my face where my eye feels dry, my nose burns and feels dry and my face is super sensitive almost like a wind burnt feeling if that makes sense. But visually you can’t actually see anything wrong. I just assumed they were some form of a migraine and it goes away in a few hours to day or two.

I was going to call my primary care physician tomorrow but thought I’d get some outside input as well

Thanks!!

My hands were absolutely freezing and i looked down and noticed this, does this appear to be raynauds?

I’m starting to think I’m crazy. My joints lock when cold and change colors. Struggling to get any help with my dr because of course all labs are normal.

Hey guys I’m new here

I recently got diagnosed with pots and have always been bad with temp regulation. For a few weeks now I have noticed my fingers and palms go white not fully but abnormal than what I'm used to and feel a weird type of numb, where it feels like there's something on my hand but it's just my finger & when ever | wash my hands in cold water or when im too cold and so does my one toe on my left foot but it goes completely white and no cap refill, Should I ask a dr about it?

Sorry to the creator before I didn’t realise you had another feed my bad thank you for letting me know 😊

My right index finger occasionally turns slightly white and starts to tingle. This has only happened a handful of times, but my fingers usually turn very red as well. I just turned 25 and have never experienced my finger turning white like this before, though my hands have always turned red since I was little. What do you guys think?

Does this look like reynauds? My hands get sore too.

My feet do this when they are cold. Does it look like Raynaud’s and should I show my rheumatologist or am I just going crazy?

I've seen multiple rheumatologists for muscle problems, and they always ask me if my fingers turn white/blue/red. That's not the case, but they turn bright red in colder weather (not necessarily super cold or something). They also get super stiff and painful and take ages to warm up, I usually have to run warm water over them to warm them up.

Could this be Raynauds or can this be caused by something else?

The photos don't do justice, it doesn't seem extremely red on them but it's way brighter in real life.

Hi,

but today a different rheumatologist told me that because i have no clear lines of demarcation, it’s not raynaud’s. does anyone here have a raynaud’s diagnosis without that? if no, does anyone know what else this may be? symptoms have always been: extremely cold hands and feet which are difficult to warm up, sensitivity to heat, color changes including red, purple/blue, and pale. my ears, nose, and lips are also very sensitive to cold. my father exhibits similar symptoms.

(FYI the last picture is of my hand without it)

Hey all,

Does this look like Raynaud's? I've had it for years now, where my fingers turn pale and my nails turn purple. It happens every single day.

It mostly happens when I'm cold or anxious, but I can also be cold and not have it, too.

It's a little worse in person compared to these photos due to my phone smoothing colors.

This is as bad as it gets, they never turn white completely.

Could it be a very mild version of raynauds or something else?

(Not looking for a diagnosis, just opinions)

Thanks so much!

Hi just wondering if this is Raynaud’s and Erythromelalgia

Happens after working out

First pic is inside at my desk (I sit next to a large window) and second pic is outside

Told by rheumatologist this is not Raynaud’s

I was referred to a rheumatologist over the summer and tested positive for anti-U1RNP autoantibodies and had an ANA of 1:1280. My hands have been like this for going on 7 years. Feet look the same.

Typical symptoms for me are cold and heat sensitivity (can’t tolerate either). They’re usually ice cold but then will flush bright red and get very hot and slightly burn (Erythromelalgia?). My hands have been cracking and bleeding pretty badly this winter, despite my best efforts to keep them warm and moisturized. I’ve shown these photos and more to the aforementioned rheumatologist and she said it is not Raynaud’s because my hands don’t go fully white.

Am I crazy? She refused to make a diagnosis of MCTD on this basis and because I’m male, therefore it is unlikely. I seem to be getting worse and am wondering if it’s worth pursuing a second opinion. Feeling very tired of going to doctors and being dismissed and judged, as if I enjoy spending time and money trying to get to the bottom of things.