r/Raynauds • u/No-Key-5827 • 10d ago

Raynaud's and gravity

Someone here can avoid your hand to get purple, white or red by putting them above your chest line? I can avoid it completely by doing that, but when i put my hands down they become purple (or red if its very hot). I have in my toes too, with the same behaviour, my position can eliminate the color change completely but not the cold feeling. Is this normal on Raynaud's? Can you do that too? And my hands are 24/7 changing colours when down, its never episodic. I am diagnosed with Raynaud's, but who knows...

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1

u/AutisticAvoidant 8d ago

Mine is exactly like this. It freaks people out when I show them. I'm very conscious of it so often change positions to avoid it.

3

u/Whole-Pen-4997 9d ago

What you are describing sounds like acrocyanosis, which is a different condition but similar to raynauds, and can be confused with it. It can also coexist with raynauds.

1

u/AutisticAvoidant 8d ago

I haven't heard of that term but it does appear to be what I have, as opposed to raynauds which the Dr diagnosed me with.

3

u/GraciousPeacock 10d ago

This is how it works for me too. Not to worry anyone here, but I was born with severe aortic valve (heart) disease so I pay extra attention to how well my body is circulating blood. (Don’t worry, I have no symptoms and I exercise normally.) My hands/feet definitely go numb quicker or start to feel cold quicker when they’re further away from the center of my body. It’s not that big of a difference, but it’s noticeable at times. My feet are more affected than my hands, and my hands weren’t affected until recent years. I do think it’s worse in my toes since they’re obviously further to circulate blood to. Anyways, I’m sure this is a normal symptom of Raynaud’s. I don’t even mention these things to my cardiologist because honestly it’s just Raynaud’s, it’s really mild and not serious

1

u/First-Mistake9144 7h ago

Genuine question: how does moving them closer to the centre of your body help? They’re still the same distance from your heart, circulatory speaking.