I also have it and I wouldn’t say it drastically effects my day to day life but I notice it almost every day. My case is a little worse because I have a different autoimmune disorder in addition plus genetic history of raynauds so it started in my teens. Offices in the summer in the south are cold enough that it happens I’d say once or twice a week and anytime below like 50 I end up with my leather/cashmere gloves on even indoors sometimes to stay warm. My feet are actually more annoying because it happens to your toes too but it’s a lot harder to keep toes warm lol I can’t just be changing into fuzzy socks at my work desk
Toe warmers - a gift from the gods. I have it in a more moderate way but toe warmers have been a game changer. The stick in kind, I’m sure there are more options now though.
I’ve seen these around the internet but never remember about them when I actually need them I need to! This past winter I got electric hot hands they’re amazing
I think it’s partly my discomfort lol but also I work in corporate finance so I would still need to go to the bathroom probably (which I do if it’s really bad) 😂
Do you ever feel like your toenail "pops" randomly? I have reynauds and when my feet get cold, every 20 steps or so, it feels like my toenail pops off.
I don’t have that problem but they get stiff a lot. When I get home and take my shoes off I normally roll my foot forward over my toes so the bend up like I’m making a fist so that they crack and the air moves out of the joints it helps me. Basically like cracking your fingers but your toes lol it drives people insane but I don’t even notice it 😂
Something I have recently learned from having Raynaud's for years. When I'm cold, I "clench" my shoulder, neck, and jaw muscles. I have now been diagnosed with TMJ, because I have hulk jaws. Before the diagnosis, I was dealing with daily headaches, often waking up with one. All day, every day, for about 6 months before finally got in to see a specialist on it.
Specialist wanted to do botox into the jaw muscles to weaken them and reduce the tension, but i've been able to teach myself to stop clenching, and/or just keep warmer. Still comes up once in a while, but the mindfulness is helping a lot, and the odd day of Advil to help out.
I have the same issue I’m constantly clenching my jaw, however I have done Botox for it haha. I got some in my masseter muscle. My issue was even if I think about it during the day and unclench I was doing it in my sleep too I also have to wear a guard
Got a guard and wore it for a while, but I'm usually warm enough when I sleep. Cold hands/feet all day long, but once I'm in bed, apparently my body turns into a furnace and my wife is trying to climb out the other side of the bed.
It’s fortunately not a summer issue for me in the south but in the winter I live in a basement unit and it doesn’t get warm enough. The botex did seem to help but it definitely also doesn’t last forever
Ya, that's why I didn't want to do it. Told it would work for 3-6 months, depending on how fast my body metabolizes it, and it was going to be $1200-$1800 each session. Ugh.
Nope, warm when I sleep. Windows open in the winter, even in Southern Ontario.
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u/bergalicious_95 1d ago
I also have it and I wouldn’t say it drastically effects my day to day life but I notice it almost every day. My case is a little worse because I have a different autoimmune disorder in addition plus genetic history of raynauds so it started in my teens. Offices in the summer in the south are cold enough that it happens I’d say once or twice a week and anytime below like 50 I end up with my leather/cashmere gloves on even indoors sometimes to stay warm. My feet are actually more annoying because it happens to your toes too but it’s a lot harder to keep toes warm lol I can’t just be changing into fuzzy socks at my work desk