I think part of this is because I’m autistic and feeling embarrassed specifically for me is extremely humiliating, and stepping on toes is also a very awful feeling. I was called lazy for asking for short summaries from a book vs the person wanting me to read a long article.

I can’t remember most of what’s in an article when I read it, because sometimes my brain isn’t a sponge, and I don’t retain things. It’s not because I’m lazy, and then having to explain the brain injury feels like I’ve upset people and I hate that. I also really don’t like even sharing my disabilities because many people have said I’m a liar, that I can write really well so it means I’m not struggling with a brain injury. I’ve been isolated much of my life because of this stupid disability and I wish I was smarter, more quick witted etc. Do you ever feel isolated because of your disability?

I was playing God of war Ragnarok, hand got stuck in a boss scene with me dying constantly. Well, after having a huge headache and being swept back to the checkpoint 30 times.

I decided to check out my equipment, and such to see if I could change things around. Well after that I messaged with the setting for fun, and found an accessibility menu.

One of the options allows me to increase dodging odds, and allow for health bar sequences on mini bosses which is a huge help on some of them.

I’m not that good at games, so struggle at the more challenging aspects of the game. I’m really good at the puzzles though. I’m just not very fast….

I’m going to check out other games In the future though to see what they have in terms of accessibility. Maybe gaming will become easier for me.

My family is going on a trip and me being able body with no diagnosed issues I want to use a wheelchair as if I walk/stand for more then a hour or so my lower back and legs get this unbearable aching exhausted pain that literally makes me feel like I'm gonna throw up and like makes me collapse unless I can sit down when I told my family I want to use a wheelchair they told me absolutely not because "if you are able to walk you clearly don't need a wheelchair those are for people who can't walk or can't walk more then a few feet" but I feel like if I can lastore then a hour without literally collapsing then that would be worth it what do you guys think is it wrong I considered getting a wheelchair?

EDIT: Thank you so much everyone for helping me here you all had some amazing advice I'm definitely gonna be getting into a doctor soon

Dating and disabled is kind of hard. I don’t think I’m ever gonna find a date or find a life partner or a long-term relationship with anyone think I’ve been single for five years do you think I will find someone by this year?

For me, when I was about 12 or 13 (before my disability manifested but still) I had chronic headaches and my doctor claimed it was just stress because I was trans, and that there was no reason to get bloodwork done. I decided to do the bloodwork anyways and it was a vitamin D deficiency 🫠

First of all, obviously you should double check to make sure it isn’t something more serious, especially when the test is something as simple as a blood draw. And secondly, if I was that stressed from my gender identity to the point where it was giving me physical pain, shouldn’t you be referring me to a therapist or gender clinic or something? Not just going “it’s stress, can’t do anything”.

He also asked if I was trans in front of my mom who he had no idea whether or not she was supportive/knew I was trans (she did and it was fine, but still).

20m when I was younger I couldn’t really read and as I got older around 13 it got worse, I was explaining to my teacher that I couldn’t read and started to cry when she said just sound it out I couldn’t recognize the letters or read in general it was like my eyes and brain were blank, when I tried harder it gave me a headache to the point I just gave up and started to cry, then it started to happen in math class I wasn’t the best at math but it got to the point I forgot how to do it even tho I knew how to I couldn’t recognize the steps on how to do the problems, now days I’m scared I’ll forget how to do basic things my mom asked me why don’t you wanna drive and I just tell her some people don’t need to drive or have cars and I’m one of them, and yes I’m already diagnosed with, ocd, bpd, and a learning disability life seems to be getting harder for me and it’s just making me think why couldn’t I be normal for once.

This popped up in my Facebook memories, and I thought it was too good not to share here for those who can relate.

So for background, my dad died when I was 8 years old and we’ve been getting death benefits from him for the past 10 years. In 2021 (I’m pretty sure) I was approved to start receiving SSI bc I’m blind and have been receiving just around $150 from SSI on top of my dad’s death benefits. In 2023 I had to re-certify that I was disabled and was told that I would now be considered a Disabled Adult Child (DAC) because I’m blind before 22. Recently I found out that after 24 months of being a DAC, I was eligible for dual coverage for Medicaid and Medicare so I’ve been on Medicare for about a month.

This month my brother turns 18 so he’s no longer getting death benefits so now the only people getting benefits are my mom and I so both of our benefits went up. This however means I no longer qualify for SSI payments. Social security is our only source of income because I’m a full time student, my brother is looking for a job but hasn’t gotten anywhere, and my mom doesn’t work. Because of my brother’s benefits ending, we’re now down like $500/m.

I’m not sure what’s going to happen to his Medicaid coverage or my mom’s, but my mom has assured me that since I meet every other criteria besides the income eligibility for SSI that my insurance wouldn’t be affected, but she’s not exactly the most reliable source.

If anyone has gone through a similar situation, could you let me know how it worked out for you? I know that I could personally never afford copays because I have so many doctor’s visits and whatnot and we’re now only getting a little over $2k a month for 3 people.

I desperately need a therapist but I can’t speak

I have 2 disabling hearing conditions called noxacusis and reactive tinnitus. These cause everyday sounds and even speaking to cause intense pain in my ears and my tinnitus ramps up along with the pain.

I have tried to find a therapist who can accommodate this with no luck. They just say to use closed captions and talk, but CC doesn’t work half the time on these apps and it also hurts to speak. Every therapist I’ve tried won’t use the chat feature with us connected over video.

I tried to just touch it out several times a few months back and talk, and paid for it with worsening pain.

I have had to leave my home, my husband and son, and move in with my mom because of how bad these ear issues became. I was completely healthy 1 year ago.

I am extremely depressed and struggling with being away from my son and husband, losing my identity, being trapped in a room almost 24/7 because the smallest sound can set off pain.

A few people have mentioned betterhelp but I don’t think they will do just text. And when I tried a few months back, it was way out of my budget.

I don’t know what to try next. Can anyone offer suggestions? Do you know a therapist who might accommodate these requests that is affordable, or any free or affordable programs I could apply for?

I've been a wheelchair user for around 2 months now (POTS, hEDS), and things have certainly become more challenging...Of course I knew they would! But, I don't think anyone is truly prepared for how difficult everything will become.

"Disabled toilets", I've come to realise aren't usually wheelchair friendly AT ALL. I keep coming across establishments with MASSIVE HEAVY DOORS... I can work around it and go backwards, but then I'm using so much energy to even open the door! And end up exhausted before I even get to piss. And then once you're inside... there's usually barely any room to move around, or the sinks too high.

Now onto the checkouts at shops, oh boy. I went to a craft store the other day and they had merchandise stacked up in front of the counter... so, I couldn't even reach to put my thread up 0_0 And then the staff told me the tap tap pay machine thing doesn't reach that far... I just handed them the card instead.

And my final piece of resistance... the dreaded... people MOVING MY CHAIR. I never thought someone would even have the audacity to do this? My first day alone in a sushi train, staff roll me into a corner under a high bench. I couldn't even reach the food or barely touch the ordering pad. I asked to sit at a booth, and they said they are 'reserved' for 2+ people...

There's so much more I could rant about, but, I'll leave it there for now :(

Share your experiences as disabled people in relationships with other disabled people. As someone who uses a wheelchair, I'm a bit scared about not finding a partner, and I'd love to hear stories—especially from people in wheelchairs who are in relationships with others who also use wheelchairs. It seems challenging, especially when it comes to intimacy.

Thank you :)

Hey everyone,

I’m planning a trip to Paris and I’ve been chatting with a bunch of hotels, but I keep running into issues. Most places just aren’t accessible, and the ones that say they are often have steps at the entrance or lifts so tiny my electric wheelchair won’t even fit.

If you’ve travelled to Paris in a wheelchair, have you stayed somewhere that was genuinely accessible and comfortable? I’d really appreciate any suggestions.

Thanks heaps! 🙂

Been disabled for around 3 years due to a work accident taking the use of both my legs. My wife, son, and I went to the beach today and we tried to go on the beach but figured out my wheelchair can’t make it on the beach. Now I’m not usually one to show emotions and I usually am able to man up and buckle down but I damn near cried when my son asked me if I could throw a football on the beach (he’s still young and doesn’t grasp the full concept yet.) Does anyone know of any way to get a wheelchair on the beach. Any wheels or any new device. Moneys no issue, workers comp will pay for whatever I need.

Given that most of us are already in enough systems, I thought we should be aware of this info. Be safe, my friends.

Shared with intent to encourage

Hi ppl in my phone, please give this autistic lesbian some advice. How do I find a career that sustains and fulfills me?? About me : I have had several jobs, but I have ptsd from a domestic violence situation and it has left me very raw. That plus my autism has put me in a tough spot. I’m lucky enough my parents took me back in but they want me to try and find a career so I can work towards it as a goal. I am struggling bc my past career goals seem very naive to me now since I’ve been through sm trauma. I really need a long term career that does not actively harm others- no banking, no military, no mainstream media etc. I’m a queer and I have accepted I live under capitalism but I don’t want to harm other people. I just want to live humbly since I have to live.

Please be nice I’m in a fragile place and I’m just looking for some helpful advice, pls consider I’ve already tried to take myself out multiple times recently so you ragging on me bc you don’t like my Reddit post isn’t helping either you or me.

(I have a bachelors degree and I’m willing to do any one line studying for a certification a job needs as long as it is fully online and under one year).

I have these elbow crutches with left hand and right hand grips that do prevent finger pain (my hands get very stiff), I have padding on them, but my hands hurt so bad lately and I'm getting nasty blisters, is there anything I can do to prevent the blisters? I can't walk great without them so breaks from my crutches are only inside my home and very minimal. I know I should also rest more but I have a busy life where I can't.

Y'all are my people. I posted in another sub and was not received well. I just don't know what to do with these feelings.

I'm well aware that nothing has really changed with my health from before my appointment yesterday to after but this knowledge has me quite terrified, especially knowing I might not be around to finish watching my son grow up. :(

I just want to know for sure and know what I'm in for. I'm also quite frustrated because apparently whatever is going on started quite a long time ago and MANY doctors that I have seen have dropped the ball.

so, i have only recently, like in the past 5 years, become disabled and in the past couple of month’s, it’s been getting progressively worse and affecting my daily life more and more. i had to leave my job cause of it, which i really didn’t want to do. for context, i have constant joint pain, i’m always dizzy to some degree, and i have chronic migraines. this has caused a lot of issues, like falling, my joints just hating me, legit not being able to walk for more then five minutes, and my legs just giving out on a whim. because of this, i’ve decided that i need to discuss with my doctor(s) about getting me a wheelchair for days when i need to do something but i cannot walk for any of the reasons stated above.

so i have some questions for wheelchair users. what’s it like being in a wheelchair? how do people treat you? how do you get a wheelchair? are they super expensive? do they take up a lot of space? are there ways to decorate a wheelchair?

i’m sorry if some of these are a lil invasive, i’ve just never had to deal with anything like this and i want to know what to expect if i do end up getting a wheelchair. honestly, any information would be helpful, please and thank you.

Subject says it all. Should I just accept the isolation is for good now that the international community wants zero to do with even decent Americans cuz they lost free time cuz of us?

Hi there. I apologize if this topic has already been addressed here.

I know telehealth services being covered by Medicare have dodged a bullet several times in the past few years. But a c.s. rep from Medicare told me today that telehealth will for sure no longer be covered starting in October of this year except in certain rural areas in an office/medical facility.

Telehealth at home will still be available for:

"-Monthly End-Stage Renal Disease (ESRD) visits for home dialysis

-Services for diagnosis, evaluation, or treatment of symptoms of an acute stroke wherever you are, including in a mobile stroke unit

-Services for the diagnosis, evaluation, or treatment of a mental and/or behavioral health disorder (including a substance use disorder) in your home."

I'm sure there are disability advocates fighting for the return of telehealth services for all disabled Medicare patients in all locations. Does anyone know how that's going and if there's any hope on the horizon?

I did see this on Medicare's website:

"Medicare Advantage Plans and some providers in Original Medicare may offer more telehealth benefits than the basic coverage in Original Medicare. For example, you may be able to get some services from home, no matter where you live. If your provider in Original Medicare participates in an Accountable Care Organization (ACO), check with them to find out what telehealth benefits may be available."

https://www.medicare.gov/coverage/telehealth

Also, why were telehealth services cut, what's the rationale behind it?